365 Days With Bonnie

Tuesday, June 26, 2018

June 26, 2018

Where has the time gone! I continue to go to Boston for treatments but there have been a few changes.
I took the bus down to Boston with my son Matthew last Friday to talk with my doctor and to have another transfusion. I have been off the pills that put me into the hospital three times. I was so afraid that the doctor was going to stop my clinical trial.

The doctor gave me three choices.

1. Continue with pills and infusion but cutting the dose of the pills down to 20 mg.

2. Continue with just the infusion and see if it shrinks my tumors.

3. Stop the Clinical Trial all together.

The doctor told me that my adrenal gland was still not working and putting me back on the pills could put me back into septic shock once again! We made the decision without much difficulty. Going with just the infusion and see if it will help shrink my tumor. Will see an adrenal specialist this Thursday. Another trip to Boston but an important one.

Sold my brand new bike last week. That was a tough one for me. I am having Future in Sight come by and giving me a few ideas to help me with my vision. They feel that I need a walking cane. EEKS! That is a hard one for me. I will have someone walk with me that is on my right side. I have walked by myself a couple of time and am very careful.

So many changes.... I have decided that I need something to work for and keep me in a positive frame of mind. I plan to sign up for the Bill Luti race that is in July. Thinking that I have someone that will stay on my right side that day. I know that I will be walking some of way. Just want to make it to the finish line!

I promise to try harder to keep up with my blog!

Christa and I are walking once again! I am feeling so much better now that I am off that pill! Just hope the infusion works!!!!

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About Us

A Note From Bonnie:

As many of you know, I was diagnosed with melanoma in November of 2010. They found traces of melanoma in two of my lymph nodes. I had the melanoma removed and during a year of treatment with interferon I came up with a bucket list of things I wanted to do in my life. One of these things was to walk 50 miles for Lend A Hand. I made a promise to myself that I was going to do it. This foundation does so many great things for people who are dealing with a cancer diagnosis. I had big plans to do my walk this year but my melanoma returned to my left lung and my brain. I had brain surgery a week after my diagnosis in September of 2017. I am now in treatments for my right lung. Since my brain surgery I lost partial vision in my right eye. I can no longer drive a vehicle which is discouraging for me. I also need a friend to walk or run by my side.

This January, my friend Christa and I did the Runner's Alley Winter Warrior Challenge for the second year in a row. We walked in sleet, blizzards, freezing temperatures and did at least 3 miles everyday for 31 days. It gave me a purpose to keep going and to remain positive. It got me off the couch and into the fresh air. It gave me a reason to get up every morning.

So on January 31, our last day of the challenge my friend said "I will walk by your side for 365 days if you would like to walk for Lend A Hand". So here we are... and so it begins!

A Note From Christa:

I have known Bonnie for 41 years. Since I was 2 years old. Bonnie is my mom's very best friend. To me, Bonnie is a great inspiration of hope and strength. I am honored to be able to walk beside Bonnie for 365 walks (and many many laughs). It makes me happy that I can help her achieve her goal of walking for Lend A Hand. I get to be her second set of eyes and I am honored.