March 29th, 2019

Back to Boston today to have a test on my adrenal gland. Go back next Wednesday for my infusion.

 Kind of funny! I sent out a request to my two sons, my soon to be daughter in law and one of my old best friends that happened to be in my group text.

 Steve really needed a break! It is hard getting up so early in the morning to hop on a bus to Boston, ride the "T" and spending the whole day sitting in a room for five hours or more while I have my infusion.

 My classmate replied immediately I was so happy. She drove down last night so we could catch the early bus to Boston.  We have been friends since grade school. Throughout the years we had lost touch but now have renewed our friendship within few years. I am sure my illness had some part in bringing us back together. She is so there for me!

We all have met so many friends throughout our lives that have been so dear to us and we seem to loose touch with each other. 
I am so blessed! So many people praying for me. 
We all have a biological clock that ticks inside 
 us from the day that we are born. We are not getting any younger! Does it take an unexpected illness to reunite with any friend?????

 My blood tests were done today for my adrenal gland that has not been working for sometime.  Will get the test results back on Monday. One good thing....They have had other patients on this similar trials that I am on  and their adrenal glands also have shut down.  They are finding that this is one of the side effects from these different trials.

Have been faithful with my walking!   All for now.

                             My friend Tina!                        

WE ARE BACK!!!

March 15tht.  We had a nice walk and it was good to be back to complete our promise to LendME A Hand! We walked 2.39 miles.

                                        Beautiful day! 60 degrees.

 March 16th. I walked along today Tried out my new prism glasses. Sneakers wet from the puddles but it didn't bother me one bit.

March 26, 2019

I have continued to walk everyday and I will do my best. It will take some time. I have a app. called Map my Walk. It will give the distance, where I have walked and average pace. I use this daily so I know how many miles I have walked.

Underneath the word distance it give the date which was Tuesday, March 26 at 2:13 P.M. I just wanted to give you all an example. I will try and have Christa help me with another example showing the date and time.

 

I looked back at my Map my Walk as it saves all the days that we have walked.

       January 2018  We walked 31 days

         February 2018  We walked 28 days

    March 2018 We walked 24 days

April 2018  We walkd14 days

May 2018 We walked 4 days.

           June 2018 We Walked only  2 days.

       July 2018 We walked only 2 days.

   August 2018 We walked 2 days.

         September 2018 We walked 0 days.

    October 2018 We walked 5 days.

        November 2018 We walked 0 days.

       December 2018 We walked 0 days.

  January 2019We walked 0 days.

    February 2019 We walked 3 days

           March 2019 We walked 13 days so far.

We have walked a total of 128 days and need to walk another 237 days to complete our goal. It seems like a lot of walking but right now I am feeling great and will walk every day.

Went to Boston last week and stayed there for a coupled of days with my sister. So nice to ride in a car and not the bus. I had to have my body scan and brain scan done early in the morning and the next day they gave me my result's and another infusion. I hate the brain scan as I seem to get very claustrophobic lately. I decided to take pill to help me relax. I didn't' think that it was enough after waiting a half hour for it to kick in so I took another one. EEEKS! I was very sleepy through both of my tests and my sister had her hands full afterwards. We decided to go pick up Steve's keys that he had left at the restaurant last month when we were in Boston!  Near Beacon Hill....The sidewalk was very narrow and I decided to go ahead of my sister, Becky. my boot got caught underneath

a grate and I went flying.

 

 Two nice men helped me up off the sidewalk. Forget the keys!!!!! We got to the car and to our motel room and I slept until dinner time.

 

Got up early the next morning  and headed to get my results of my scans and to have my infusion. My scans came back clean! What a relief. It is so nerve racking!

 

I will continue to wear these socks that a dear friend gave me! Thank you Pam!

 

 

Heading  down to Boston this Friday to have my adrenal gland tested. Let's hope it has kicked back in. If not I am on prednisone for the rest of my life. Ugh!

Next time I have my scans done I will only take one pill!!!!! That's a promise. Keep me in your prayers!  P.S. My knees are still sore!

 

 

 

 

 

 

 

3-11-19

I will not go to bed until I finish this blog. Spent another 2 hours trying to type about my last few weeks and I lost the first page.  I finally realize that I need to start saving my things that I write. It is 10:30  and I'm rather tired but I promised myself that I would not go to bed until I finish this blog. I guess I will make this short and brief...

I called my optometrist at the end of February to see if my new glasses arrived. Just waiting  patiently to hear from them... Figured that the squeaky wheel gets the grease so I called!  It had been over a week! My new glasses were in!!!! I immediately called the Vision Victory Center and asked if they had any openings for this same day. They said that they could not fit me in and that it would be a couple of weeks before I could be seen. The day that they wanted me to come in was the day for my infusion in Boston. I told her that I had just got my new glasses and that I could not make the appointment that they wanted me to come in for because of my appointment in Boston  She  hesitated and then asked me if I could come in at 3 o'clock!. 

I arrived at the Vision Victory Center and waited patiently in the waiting room with others that had vision issues. My doctor came out and asked if she could have my new glasses. I gave them to her and waited. She came out with a prism strip on the top of my right lens and a prism strip on the bottom of my right lens. She asked me to take a walk down the hallway and to look into the top  prism. Wow! My peripheral vision was so much better. She then asked me to look into the bottom part of the prism on my glasses. Amazing! I looked into it and saw a ladies sneaker that was to the right of me. in the waiting room. I could have touched it! NOT!!!! It was a foot away! Why did I have to wait so long for this miracle. There is hope out there for everyone.

Look out Market Basket here I come.No more passing me on the right and I promise not to hit the side of the isles and knock off anymore can goods!
Off to Boston again next week for scans and mor mri's. This is when I get nervous! I take the bus every other week and have my infusions! It will have been one year this April since I have had my treatments. I hate taking the bus and "T" that takes me to MAss. General but I don't have much choice. There are people that travel miles and even fly for this treatment that I am having.  WHY DO I KEEP PUSHING SAVE!!!!!!!!! It is now 11:12.
I think this blog is going to be a go! Will let you know how my scans turn out.If there are any mistakes in my blog.....it's okay and I sure you will understand... Love my friends and family. Just a few photos to share!  Christa and I are ready to walk again. New glasses, new outlook on life and need to complete our 365 day walk! 

Our dearest friends!

My grandchildren that keep me going!

My soon to be my granddaughter! xxoo

I thank god for every day that I am her on this earth!

Going to push the publish button now! I've got this!