365 Days With Bonnie

Tuesday, May 15, 2018

5-13-18
Tuesday night

Hello my dear friends! After coming home from the hospital I had one week to recover at home before going back down to Mass General to talk about continuing with my trial.We needed to cut back the dose as it was too strong for me to tolerate. I was still recovering from my stay in the hospital but decided to continue with the trial. Within two weeks it had taken 20% of my tumor.
Was there for 8 1/2 hours that day with my friend Sandy. Blood work, infusion and lots and lots more blood work drawn.(also continue to take my daily pill and keep a daily log. Spent the night in Boston as I had to return for one more set of blood work at 8:00.

The treatment seems to be working. Still have V.N.A. coming once a week. They are a little concerned about my weight. I have started to eat better these last couple of days and have put on a couple of pounds. Loosing 25 lbs wasn't any fun.

Have started walking with Christa once again. Walked yesterday and today. We also have been riding scooters! I felt kinda down one day and said "If I can;t drive anymore and can't ride a bike then I will find another way that I can get around. SO BE I

Off to Boston tomorrow for another treatment! Chris (my son is going with me this time! He chose to take the bus! Picking me up at 4 a.m.

So glad to have some energy once again. Thanks to my sister Becky and my friend Val for rushing me down to Boston 3 weeks ago. It sure was a close call! Don't really remember much that day! Will have Christa put a few photos of us on the blog tomorrow. Having a hard time loading them!

Thanks again for all of you who have been following our blog! It is good to be back!

1 comment:

ksheaMay 20, 2018 at 8:49 AM
Good to see an update. You got this Bonzo. Maudie sends her love.
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About Us

A Note From Bonnie:

As many of you know, I was diagnosed with melanoma in November of 2010. They found traces of melanoma in two of my lymph nodes. I had the melanoma removed and during a year of treatment with interferon I came up with a bucket list of things I wanted to do in my life. One of these things was to walk 50 miles for Lend A Hand. I made a promise to myself that I was going to do it. This foundation does so many great things for people who are dealing with a cancer diagnosis. I had big plans to do my walk this year but my melanoma returned to my left lung and my brain. I had brain surgery a week after my diagnosis in September of 2017. I am now in treatments for my right lung. Since my brain surgery I lost partial vision in my right eye. I can no longer drive a vehicle which is discouraging for me. I also need a friend to walk or run by my side.

This January, my friend Christa and I did the Runner's Alley Winter Warrior Challenge for the second year in a row. We walked in sleet, blizzards, freezing temperatures and did at least 3 miles everyday for 31 days. It gave me a purpose to keep going and to remain positive. It got me off the couch and into the fresh air. It gave me a reason to get up every morning.

So on January 31, our last day of the challenge my friend said "I will walk by your side for 365 days if you would like to walk for Lend A Hand". So here we are... and so it begins!

A Note From Christa:

I have known Bonnie for 41 years. Since I was 2 years old. Bonnie is my mom's very best friend. To me, Bonnie is a great inspiration of hope and strength. I am honored to be able to walk beside Bonnie for 365 walks (and many many laughs). It makes me happy that I can help her achieve her goal of walking for Lend A Hand. I get to be her second set of eyes and I am honored.